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Consumer Medical Symposium – Raleigh, NC

Consumer Medical Symposium – Raleigh, NC March 4-5, 2023

Hilton Raleigh North Hills

3415 Wake Forest Road
Raleigh, NC 27609

Registration Deadline: 02/13/2023 11:59 PM

The largest education and support event for the NC Bleeding Disorders Community is Back in Raleigh for 2023!

Community    •     Education    •     Support

Agenda     First Time Attendee Information     Children & Teen Track     Register

The Consumer Medical Symposium is the Bleeding Disorders Foundation of North Carolina’s (BDFNC) annual education event for the entire bleeding disorders community. The Future is HERE; there are now novel therapies available or in development that change how a bleeding disorder is treated; factor products with longer half-lives are available, and the first gene therapy product has been approved for patients with hemophilia B. With so many new and exciting developments, we know that you want to learn more!

Sessions will be available for ALL bleeding disorders, including hemophilia, platelet disorders, ultra-rare factor deficiencies, and von Willebrand disease. There will be sessions for men with a bleeding disorder, women with a bleeding disorder, families with children diagnosed with a bleeding disorder, partners/spouses of someone with a bleeding disorder, advocacy for bleeding disorders, and in Spanish. We will be providing a children and teen track with a variety of activities. Additionally, some sessions will be available in a hybrid format, so if you cannot attend in person, you will still be able to tune in.

There will be time to get to know other people in the bleeding disorders community during different networking activities throughout the weekend. There will be prizes for attending some of the sessions as well as a variety of great raffle prizes at the conclusion of the event!

The Consumer Medical Symposium is FREE to attend, and as in past years, a hotel room will be provided at no cost on Saturday for those traveling from outside of the Raleigh area. Saturday lunch and dinner and Sunday breakfast and lunch, along with snacks, will also be provided.

Registration is required by February 13.

AGENDA 
(subject to change)

Saturday, March 4

9:00 am – 10:00 am

Check-in with BDFNC

9:30 am – 10:00 am

First Time Attendee Session

10:00 am – 10:30 am

Welcome

10:30 am – 12:00 pm

Key Note: The Future is HERE * +

12:00 pm – 1:15 pm

Lunch

1:30 pm – 2:15 pm

Hemophilia

 

Basics of Innovative Therapies

Platelet Disorders & Ultra-rare Factor Deficiencies

 

Ultra Rares and Personal Advocacy

Von Willebrand Disease

 

Session TBA

2:15 pm – 3:00 pm

Exhibit Break

3:00 pm – 3:45 pm

Meet & Greet

 

Parents/Guardians & Adults with Bleeding Disorders

Latin Union*

 

Building Connections

 

Partner & Spouse Support

4:00 pm – 5:00 pm

Learn About Bleeding Disorders Products & Services

6:30 pm

Dinner & Evening Activity

 

Sunday, March 5

8:00 am – 9:00 am

Breakfast

9:00 am – 10:00 am

Sessions to be announced

10:00 am – 11:00 am

Check Out of Rooms & Exhibit Break

11:00 am – 11:45 am

Families – HOPE Program

 

Overcoming Challenges

 

Men – Blood Brotherhood Program

 

Joint Protection

 

Women – SOAR Program

12:00 pm – 1:00 pm

Clinical Trials * +

1:00 pm – 2:15 pm

Lunch

2:15 pm – 3:00 pm

Families – HOPE Program

 

Parent/Guardian Connection

Men – Blood Brotherhood Program

 

Reconnecting the Mind & Body through Fitness

Women – SOAR Program

 

Women’s Chat

3:00 pm – 4:00 pm

Advocacy & Insurance for Bleeding Disorders * +

4:00 pm – 4:15 pm

Final Notes * +

 

* Sessions will be available in Spanish
+ Sessions will available on Zoom

First Time Attendees

The First Time Attendee Session is for anyone who has never attended an Annual Meeting/Winter Conference/Consumer Medical Symposium in the past. You will have the option to select this on your registration, and we will reach out to you with more information.

 

 

 

 

 

More information about the Children and Teen Tracks will be available soon.

Thank you to the generous sponsors who have made this event possible.

DIAMOND

CSL Behring         

Pfizer         

 

GOLD

Bayer          BioMarin

Genentech         

 

SILVER

Accredo          CSI Pharmacy

 

PROGRAM PARTNER