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Consumer Medical Symposium – Raleigh, NC

Consumer Medical Symposium – Raleigh, NC March 4-5, 2023

Hilton Raleigh North Hills

3415 Wake Forest Road
Raleigh, NC 27609

Registration Deadline: 02/13/2023 11:59 PM

The largest education and support event for the NC Bleeding Disorders Community is Back in Raleigh for 2023!

Community    •     Education    •     Support

Agenda     First Time Attendee Information     Children & Teen Track    

The Consumer Medical Symposium is the Bleeding Disorders Foundation of North Carolina’s (BDFNC) annual education event for the entire bleeding disorders community. The Future is HERE; there are now novel therapies available or in development that change how a bleeding disorder is treated; factor products with longer half-lives are available, and the first gene therapy product has been approved for patients with hemophilia B. With so many new and exciting developments, we know that you want to learn more!

Sessions will be available for ALL bleeding disorders, including hemophilia, platelet disorders, ultra-rare factor deficiencies, and von Willebrand disease. There will be sessions for men with a bleeding disorder, women with a bleeding disorder, families with children diagnosed with a bleeding disorder, partners/spouses of someone with a bleeding disorder, advocacy for bleeding disorders, and in Spanish. We will be providing a children and teen track with a variety of activities. Additionally, some sessions will be available in a hybrid format, so if you cannot attend in person, you will still be able to tune in.

There will be time to get to know other people in the bleeding disorders community during different networking activities throughout the weekend. There will be prizes for attending some of the sessions as well as a variety of great raffle prizes at the conclusion of the event!

The Consumer Medical Symposium is FREE to attend, and as in past years, a hotel room will be provided at no cost on Saturday for those traveling from outside of the Raleigh area. Saturday lunch and dinner and Sunday breakfast and lunch, along with snacks, will also be provided.

Registration is closed. Please contact the BDFNC office for more information.

(subject to change)

Saturday, March 4

9:00 am – 10:00 am

Check-in with BDFNC

9:30 am – 10:00 am

First Time Attendee Session

10:00 am – 10:30 am


10:30 am – 12:00 pm

The Future is HERE * +

Presentation: Gene Therapy for Hemophilia, Tyra Holland, RN, BSN, MBA

Panel: Nigel Key, MD; Kristy Lee, MS, CGC; Andrew Scott

12:00 pm – 1:15 pm


1:30 pm – 2:15 pm



Basics of Innovative Therapies


Angela Lambing, MSN, ANP, GNP

Platelet Disorders & Ultra-rare Factor Deficiencies


Ultra Rares and Personal Advocacy


Katherine Cabrera, NHF

Von Willebrand Disease


Updates on the Management of von Willebrand Disease


Brendan Kleiboer, MD

2:15 pm – 3:00 pm

Exhibit Break

3:00 pm – 3:45 pm

Meet & Greet


Parents/Guardians & Adults with Bleeding Disorders

Latin Union*


Building Connections


Nichole Thomson, Takeda


Partner & Spouse Support


Nick Henry

4:00 pm – 5:00 pm

Learn About Bleeding Disorders Products & Services

6:30 pm



Life is Magic, Joshua Lozoff

Sunday, March 5

8:00 am – 9:00 am


9:00 am – 10:00 am

Rotating Breakout Sessions


Vonvendi and You  ​​ ​​ ​​ ​​ ​​ ​​ ​​ ​​​​ HEMGENIX  ​​ ​​ ​​ ​​ ​​ ​​ ​​ ​​​​ Pfizer and You  ​​ ​​ ​​ ​​ ​​ ​​ ​​ ​​​​ Ixinity

10:00 am – 11:00 am

Check Out of Rooms & Exhibit Break

11:00 am – 11:45 am

Families – HOPE Program


Adversity, Strength, Resilience


Rachel Cooper-Leal, Pfizer

Men – Blood Brotherhood Program


Joint Protection

Morgan Cook, Takeda


Women – SOAR Program


Intimacy for Women with Bleeding Disorders


Sarah Watson

12:00 pm – 1:00 pm

Understanding the Journey of Gene Therapy Clinical Trials * +


Lesley Milliner, Spark Therapeutics

1:00 pm – 2:15 pm


2:15 pm – 3:00 pm

Families – HOPE Program


Parent/Guardian Connection


Gillian Schultz, BDFNC

Men – Blood Brotherhood Program


Using Fitness to Fight Back

Women – SOAR Program


Women’s Chat


Cheryl Clark

3:00 pm – 4:00 pm

Advocacy & Insurance for Bleeding Disorders * +


Charlene Cowell, BDFNC; April Lindsey-Evans

4:00 pm – 4:15 pm

Final Notes * +




* Sessions will be available in Spanish
+ Sessions will available on Zoom

First Time Attendees

The First Time Attendee Session is for anyone who has never attended an Annual Meeting/Winter Conference/Consumer Medical Symposium in the past. You will have the option to select this on your registration, and we will reach out to you with more information.






Children & Teen Programming

Childcare will be provided by NannysPlus.
Children’s activities include a program from the NC Museum of Natural Science and Game Truck.

The Teen Track will be facilitated by Beyond Recreation.

Thank you to the generous sponsors who have made this event possible.


CSL Behring         







Bayer          BioMarin




Accredo          CSI Pharmacy