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Advocacy

What We Do

The Bleeding Disorders Foundation of North Carolina (BDFNC) monitors legislation that affects the bleeding disorders community and advocates for changes in policies as needed. We strive to keep up-to-date on issues which affect the bleeding disorder community. BDFNC’s goal is to educate our local politicians and healthcare officials about bleeding disorders, including the resources necessary to maintain and improve the quality of life of those affected by bleeding disorders.

We Need Your Voice

Your voice matters! It’s important that policymakers, elected officials, and other legislative staff hear from people with bleeding disorders in order to understand the impact of their decisions. Whether you advocate in Washington DC, Raleigh, or at home, you have the power to impact the future of your own access to better treatment and care through your own advocacy.

How to get involved

BDFNC has an active Advocacy Committee which meets by phone on the first Tuesday of each month at 7:00pm. Please contact Charlene Cowell, Executive Director, at info@bleedingdisordersnc.org or 919-319-0014 for more information or to answer to any questions you may have about the committee. 

Resources:

Find your state legislators

Find your federal legislators

Hemophilia Federation of America’s Advocacy Webpage

National Hemophilia Foundation’s Advocacy Webpage