Archives: Add Board of Directors

Steven recently retired as the Regional Coordinator for the Region IV-North Hemophilia Treatment Center Network composed of ten hemophilia centers in Kentucky, North Carolina, South Carolina, and Tennessee. He was based at the University of North Carolina at Chapel Hill, which holds subcontracts from Hemophilia of Georgia/the Maternal and Child Health Bureau and the American […]

Kathy rejoined the board in 2018 after a six-year hiatus. She has been an officer or board member on and off since the mid-1970s. She and her husband Charles (factor VIII severe) have stayed involved–Charles as HNC’s volunteer webmaster and both of them (at different times) as volunteer Interim Executive Director, and as captains of […]

Originally from New Jersey, Karyn relocated to North Carolina in 2011 after residing in Georgia for sixteen years. Following an early career in client services, Karyn spent several years as a stay-at-home parent before returning to school and earning a degree in Human Services, Non-profit Administration, from Kennesaw State University in Kennesaw, Georgia. Karyn held […]

Brittany Gabriel is a Duke Sanford School of Public Policy graduate student pursuing a Master’s in Public Policy. She focuses on black maternal health and reproductive rights, emphasizing equity, access, and education. Her research interests include improving health outcomes for black women and all women of color, securing body autonomy policies and legislation, and reproductive […]

Ellen is a native of Norwalk, CT but has lived in Raleigh with her husband Mitch and two children, DJ and Sydnee since 2007. They have one furbaby, Bailee. Ellen graduated from Capella University with a Ph.D in Human Resource Management.  She is also a graduate of Southern Connecticut State University where she earned a […]

Ann Skinner is returning to the board after having served from 2011-2013. She is a founding member of SOAR, the BDFNC women’s group, and is a member of NHF’s Rare and Ultra-rare Priority Action Team. Ann has PhD in Developmental Psychology and works as a Research Scientist at Duke University’s Center for Child and Family […]

Arlette is from Ayden, NC now living in Greenville, NC, and is married with two adult children. She works as a Clinical Nurse Specialist at ECU in the Family Autism and Developmental Behavior department. Arlette has been a nurse for 12 years and has worked as a nurse aide since her junior year in high […]