Connect with the North Carolina bleeding disorders community at the largest education and community event of the year!
Building Community Resources
CHILDREN’S TRACK AND TEEN TRACK
FIRST-TIME ATTENDEE INFORMATION
INFORMATION IN SPANISH, INCLUDING SIMULTANEOUS INTERPRETATION
Whether you call it the Annual Meeting or Community Medical Symposium, the Bleeding Disorders Foundation of North Carolina (BDFNC) is pleased to open registration for this year’s annual education event. The Community Medical Symposium’s theme of Building Community Resources will be evident throughout the weekend. Each day will feature sessions to inspire and empower you, making you better equipped to manage your bleeding disorder. Whether you have been living with a bleeding disorder for 70 years, are the parent of a child with a bleeding disorder, or fall in between, everyone can expect to leave the Community Medical Symposium with something to improve their lives.
There will be sessions for ALL BLEEDING DISORDERS:
- Hemophilia
- Platelet Disorders
- Ultra-Rare Factor Deficiencies
- Von Willebrand Disease
There will be sessions for ALL MEMBERS OF THE COMMUNITY
- Advocacy
- Men with bleeding disorders
- Women with bleeding disorders
- Parents and families
- Spouses/partners of someone with a bleeding disorders
- Children
- Teens
- In Spanish: Unión Latina session on Sunday, How to Respond & Recognize Bleeds. Simultaneous Interpretation by Full Circle Interpreting both days.
You can expect time to get to know people from across North Carolina during a variety of networking and connection activities throughout the weekend. There will also be door prizes at the conclusion of the event!
As always, the Community Medical Symposium is FREE to attend. Sessions will begin on Saturday morning and will conclude on Sunday afternoon. Saturday morning snack, lunch, afternoon snack, and dinner; and Sunday breakfast, morning snack, and lunch will be included. As in past years, one hotel room per family will be provided at no cost on Saturday for those traveling from outside of the Charlotte area. If you also need a hotel on Friday night or live in the Charlotte area and would like a hotel room on Saturday night, please contact Gillian to find out more.
Register now to reserve your spot! If you have questions, please contact the BDFNC office at 919-319-0014.
AGENDA
** Select Sessions Interpreted into Spanish by Full Circle Interpreting
Saturday
8:30-9:30 AM — Registration with BDFNC
9:30-10:00 AM — Welcome to the Community Medical Symposium**
10:00-11:00 AM — Conference Intro with GutMonkey, Margaret Bridges**
11:00 AM-12:00 PM — Current and Upcoming Novel Therapies for Treatment of Bleeding Disorders, “Bobby” Duc Tran, MD**
12:00-1:00 PM — Lunch & Exhibits Open
1:00-1:30 PM — Visit with Exhibitors
1:30-2:15 PM — Breakout sessions including:
Joints & Exercise in the Changing Landscape of Bleeding Disorders, Lora Joyner, PT
Let’s Chat About Iron Deficiency, Lauren Imboden, MMS, PA-C
Life After High School: Entering the Workforce, Morgan Cook
Understanding the Immune System and it’s Relationship to Investigational Gene Therapy, Lesley Milliner**
2:15-2:45 PM — Visit with Exhibitors
2:45-3:45 PM — Advocacy Session with Representative Becky Carney and Devonte S. Wilson, Director of Community Engagement for Congressman Jeff Jackson**
4:00-5:00 PM — Industry Roundtables
6:30-7:30 PM — Dinner
7:30-8:30 PM — Bleeding Disorders Jeopardy and Other Games!
Sunday
8:00-9:00 AM — Breakfast & Exhibits Open
9:00-9:45 AM — Breakout sessions including:
Factor Up and Discover the Possibility of Higher Factor VIII Levels for Longer, Robin Jones, RN, Xaviette Pointer-Kincy**
Experience Gene Therapy for Hemophilia — from Eligibility to Infusion & Beyond, Stephanie Torres
HEMGENIX: The First and Only FDA-Approved Gene Therapy for Hemophilia B, Betsy Koval
Vonvendi, Morgan Cook
9:45-10:45 AM — Check out of Rooms, Visit with Exhibitors
10:45-11:45 AM — Breakout sessions including:
Aging with a Bleeding Disorder, Lena Volland
Reproductive Health, Menstruation, and Menopause, Maria Tovar-Herrera, RN-BC, BSN
Spotlight on Siblings, Xaviette Pointer-Kincy**
Partner, Spouse, & Caregiver Support, Nick Henry
11:45 AM-12:45 PM: Lunch & Exhibits Open
1:00-1:45 PM — Breakout Sessions including:
Gene Therapy Research: Understanding the Science, Stephanie Torres
Development in Rare Bleeding Disorders: Ryan Woods, MD
Sangrados: cómo reconocerios y responder a ellos
2:00-3:00 PM: Journey Through the Clotting Cascade**
3:00 PM: Wrap Up and Depart, PRIZE DRAWINGS!
CHILDREN’S TRACK AND TEEN TRACK
Saturday: 1:00 PM – 5:00 PM, Sunday: 9:00 AM – 11:45 AM: Teen Program facilitated by GutMonkey
Saturday: 9:00 AM – 5:00 PM, Sunday: 9:00 AM – 3:30 PM Childcare, Clotting for Kids on Sunday
FIRST-TIME ATTENDEES
| FIRST-TIME ATTENDEES
If you have never attended a Community Medical Symposium (Annual Meeting/Winter Conference) before, there will be an optional Zoom meeting the week before the event. You will have the option to select First Time Attendee on your registration. Gillian will reach out to you with more information. |
HOTEL INFORMATION
If you would like to reserve and pay for your own hotel room, we have reserved a room block with a special room rate of $149 per night. Please click here to make your reservation.
