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2024 Ultra Rare Bleeding Disorders & VWD Community Day – Chapel Hill, NC or Online

2024 Ultra Rare Bleeding Disorders & VWD Community Day – Chapel Hill, NC or Online June 8, 2024

UNC Friday Center

100 Friday Center Drive
Chapel Hill, NC 27517

In Person in Chapel Hill or Online. Zoom link will be provided to all online participants.
Registration Deadline: 06/02/2024 11:59 PM

Community Connections     ◊    Education    ◊    Support

The Bleeding Disorders Foundation of North Carolina invites you to the Ultra-Rare Bleeding Disorders and von Willebrand Disease Community Education Day. This event is dedicated to community members who are affected by any ultra-rare factor deficiency, platelet disorder, or von Willebrand disease (VWD) to provide you with connections and education that will empower you to overcome barriers and manage your bleeding disorder.

We understand that you face unique challenges and need the opportunity to share experiences and knowledge is a safe space that is dedicated to you. By coming together, we can build a sense of community and belonging.

While the agenda is still being finalized, there will be opportunities to connect, share experiences, challenges, and triumphs, engage in discussions, and learn tools to advocate for yourself/loved ones. Lunch and snacks will be provided.

If you are unable to attend in person but still want to participate, we will have sessions available virtually on Zoom. When you register, please indicate that you plan to participate virtually.

There are a limited number of hotel rooms available at the Hampton Inn & Suites Chapel Hill Durham, with a discounted rate of $152 (plus taxes & fees) per night. *Please note, BDFNC is not providing hotel rooms for this event. If you would like to make a reservation, please do so by clicking on the booking link. This will take you directly to their website. You must reserve your hotel room by May 10. Don’t forget to complete the BDFNC registration below. (If you are looking to stay overnight but the hotel rate is a hardship for you, please contact Gillian).

While children are welcome to attend, please note that childcare will not be provided at the event. Children will need to stay with you for the duration of the day.