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2024 HOPE Family Day – Raleigh, NC

2024 HOPE Family Day – Raleigh, NC May 18, 2024 from 12:00-3:00 pm

Marbles Kids Museum

201 East Hargett Street
Raleigh, NC 27601

Registration Deadline: 05/12/2024 11:59 PM

If you are the parent or caregiver of a child with a bleeding disorder, you don’t want to miss the HOPE Family Day! Join the Bleeding Disorders Foundation of North Carolina (BDFNC) at Marbles Kids Museum in Raleigh for lunch and a special presentation. All attendees will also receive FREE admission for the museum.

Lucia Opara, Social Worker for the UNC Hemophilia and Thrombosis Center will lead a presentation about managing needle phobia in children. While it is normal for children (and even adults) to have some anxiety about needle sticks for medical procedures, when your medical treatment is administered through a needle, managing this anxiety is extra important! We’ll discuss what’s normal and strategies that parents and children can use to adjust to needle sticks. As part of the program, there will be opportunities to share your experiences and ask questions. Even if your child has become comfortable with needle sticks, sharing your and your child’s experience can help someone else!

Lucia Opara joined UNC Hemophilia and Thrombosis Center in November 2023. She is a double Tarheel receiving her Bachelor of Arts in Sociology and Master of Social Work degrees from the University of North Carolina at Chapel Hill. Lucia has an extensive background in Social Security disability, Medicaid, and psychotherapy.

In addition to lunch and the presentation, there will be crafts and the opportunity to network and connect with other families that have a child with a bleeding disorder. Following the presentation, everyone will receive tickets to enjoy Marbles Kids Museum. Marbles Kids Museum is located in the heart of downtown Raleigh and features educational and hands-on exhibits as well as an IMAX theater.

Registration is required. Please register by clicking the button below by Sunday, May 5. This event is part of BDFNC’s HOPE Program. The mission of the HOPE Programs is to improve the quality of life for families of children with a bleeding disorder, so that they may HOPE to lead a fulfilling life. Priority registration will be provided to families who have a child twelve or under, diagnosed with a bleeding disorder.

Registration is closed. Please contact the BDFNC office to see if space is available.

Thank you to our sponsors

BioMatrix          CSL Behring     

Pfizer         Sanofi