World Hemophilia Day Event – Charlotte, NC

World Hemophilia Day Event – Charlotte, NC April 17, 2026 from 6:30-8:30pm

Dressler's

1100 Metropolitan Ave, Unit #125
Charlotte, NC 28204

Registration Deadline: 04/10/2026 11:59 PM

Join the Bleeding Disorders Foundation of North Carolina for a World Hemophilia Day Celebration! On April 17,  the World Federation of Hemophilia (WFH) brings the global bleeding disorders community together with a theme of  “Diagnosis: First step to care”. The theme highlights the critical importance of diagnosis, the essential first step in treatment and care.

Sanofi will lead: Redefine what’s possible from the “One Family Program”. One Family brings the bleeding disorders community together to celebrate World Hemophilia Day. This year’s program is a powerful call to action, igniting the community to redefine what’s possible in life with a bleeding disorder. This year, we’re inspiring each person to rethink their own perceived limits and explore a future of more possibilities. Participants will celebrate individual empowerment, challenge norms, and inspire the community. This program will empower the community to redefine what’s possible in living with a bleeding disorder and help shape the lives they want for themselves and the community. Some of the hands-on activities will include:

  • Goal-setting craft activity
  • DIY photo frames
  • Instant camera Selfie Stations
  • Conversations and connections

Let’s celebrate our community and continue working towards a world where everyone—with hemophilia A or B, von Willebrand disease (VWD), ultra-rare factor deficiency, or platelet disorder—has access to diagnosis, treatment, and comprehensive care.

Registration is closed. Please contact the BDFNC office to see if space is available.

The Charlotte Festival & Walk is on June 6, register and donate today!

The Charlotte Festival & Walk has passed, but there is still time to donate!

The BDFNC office will be closed from December 22 to January 4 for the holiday season. Please note: All assistance programs will be paused (you can still apply) and applications will be reviewed once the office re-opens.