The Bleeding Disorders Foundation of North Carolina (BDFNC) is excited to host the inaugural Ultra-Rare Bleeding Disorders & von Willebrand Disease Education Day! If you are affected by a platelet disorder, ultra-rare factor deficiency, or von Willebrand disease (VWD), we hope that you will join us at the UNC Friday Center in Chapel Hill for a day of connection and education.
The agenda is still being finalized, so continue to check back for updates.
Agenda (all times and sessions are subject to change)
9:00 am – 10:00 am: Registration
10:00 am – 11:00 am: Welcome Session and Ice Breakers
11:00 am – 12:00 pm: Sessions for VWD & Ultra-Rare Bleeding Disorders
12:00 pm – 1:00 pm: Lunch
1:00 pm – 3:00 pm: Sessions for VWD & Ultra-Rare Bleeding Disorders
3:00 pm – 4:00 pm: Group Activity
Unable to attend in person, but interested in participating virtually? Some sessions will be available to stream as well. More details coming soon.
We hope you will join us for our first Ultra-Rare & VWD event! Registration is required. Please register by June 17.
*Please note – childcare will not be provided at this event. However, you are welcome to bring them along to the sessions.
Masks are required at in-person events for all attendees two and older, as we feel it is in the best interest of the community. When you register, you must agree to respect and abide by the following rules:
- Masks will be required for everyone ages two and up.
- Maintain physical distance from other families.
- If you or anyone in your family are feeling sick or have COVID-19 symptoms, please stay home.