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Summer Community Retreat – Lake Junaluska, NC

Summer Community Retreat – Lake Junaluska, NC July 8, 2022 - July 10, 2022

Lake Junaluska Conference & Retreat Center

91 N Lakeshore Drive
Lake Junaluska, NC

Registration Deadline: 06/13/2022 12:00 AM

The Bleeding Disorders Foundation of North Carolina (BDFNC) is so excited about the Summer Community Retreat! This event is taking the place of the past Adult and Family Retreats, for a weekend for the entire bleeding disorders community to connect, learn, and have fun! This year’s event will be held at the beautiful Lake Junaluska Conference & Retreat Center in the NC mountains west of Asheville.

Accommodations and meals will be provided at no cost to BDFNC member families thanks to the generous support of our sponsors and donors. Check-in at the Retreat Center will be on Friday evening, and we hope that you will join us for an informal reception once you have checked in. Programming will take place on Saturday and Sunday, with plenty of time to enjoy the surrounding area and everything the Retreat Center has to offer. Programming will conclude after lunch on Sunday. Included in your registration are:

  • Hotel accommodations on Friday and Saturday night.
  • Breakfast, lunch, and dinner on Saturday. Breakfast and lunch on Sunday.
  • Saturday night fun & games.
  • Interactive sessions are geared towards adults with a bleeding disorder and parents raising a child with a bleeding disorder.
  • Children’s and Teen Sessions.
  • Lots of time to get to know other families across North Carolina affected by bleeding disorders.


Friday, July 8

4:00 pm – 8:00 pm Arrive at Lake Junaluska, Check-in at the Terrace Hotel Terrace Hotel
6:00 pm – 8:00 pm Meet & Greet Harrell Auditorium

Saturday, July 9

7:30 am – 8:30 am Breakfast Terrace Dining Room
9:00 am – 10:00 am Welcome Session Harrell Auditorium
10:00 am – 10:30 am Vendor Visit Terrace Auditorium
10:30am – 12:00 pm Critical Listening Harrell Auditorium
12:00 pm – 1:00 pm Lunch Terrace Dining Room
1:00 pm – 2:00 pm Breakout Session: Growing Up with a Bleeding Disorder Harrell Center 102
1:00 pm – 2:00 pm Breakout Session: Aging with a Bleeding Disorder Harrell Center 202
2:00 pm – 3:00 pm Mental Health: A Deeper Dive Harrell Auditorium
3:00 pm – 4:00 pm Gene Therapy Jeopardy Harrell Auditorium
4:00 pm – 4:30 pm Vendor Visit Terrace Auditorium
6:00 pm – 7:00 pm Dinner Terrace Dining Room
7:30 pm – 9:00 pm Game Night Harrell Auditorium

Sunday, July 10

7:30 am – 8:30 am Breakfast Terrace Dining Room
9:00 am – 9:45 am Industry Roundtable Harrell Auditorium
9:45 am – 10:45 am Looking from the Outside In: Musculoskeletal Ultrasound Harrell Auditorium
10:45 am – 11:15 am Vendor Visit Terrace Auditorium
11:15 am – 12:00 pm Wrap Up Harrell Auditorium
12:00 pm Lunch & Depart Terrace Dining Room

The Children’s Track and Teen Track will be sent to all registered participants.

Gas cards will be provided for those who are traveling more than 75 miles one-way to help offset some of the costs of travel. These will be provided at the conclusion of the event. 

Registration is required by Monday, June 13. Registration is available on a first-come-first-served basis. Please register early to guarantee your attendance.

Masks will be required indoors for all attendees two and older, as we feel it is in the best interest of the community. When you register, you must agree to respect and abide by the following rules:

  1. Masks will be required for everyone ages two and up.
  2. Maintain physical distance from others when possible.
  3. If you or anyone in your family are feeling sick, have COVID-19 symptoms, or have tested positive for COVID-19, please stay home.

Registration is closed. Please contact the BDFNC office to see if space is available.

The Bleeding Disorders Foundation of North Carolina gratefully acknowledges the following companies and organizations for their support of the 2022 Summer Community Retreat:


Program Partners:


Presenting Sponsors:


Gold Sponsors:

CSL Behring           Novo Nordisk


Silver Sponsors:

CVS      DrugCo    Octapharma

    Pfizer      Sanofi