Ultra Rare Bleeding Disorders & VWD Community Weekend – Virtual

Ultra Rare Bleeding Disorders & VWD Community Weekend – Virtual March 21-22, 2026

Virtual (Zoom)
Registration Deadline: 03/20/2026 11:59 PM

Community Connections     ◊    Education    ◊    Support

The Bleeding Disorders Foundation of North Carolina invites you to the Ultra-Rare Bleeding Disorders and Von Willebrand Disease Community Education Weekend. This event is dedicated to community members who are affected by any ultra-rare factor deficiency, platelet disorder, or von Willebrand disease (VWD) to provide you with connections and education that will empower you to overcome barriers and manage your bleeding disorder.

We understand that you face unique challenges and need the opportunity to share experiences and knowledge in a safe space that is dedicated to you. By coming together, we can build a sense of community and belonging.

Attend the sessions so that you will have a chance to win a prize at the raffle drawing!

 

Registration is closed. Please contact the BDFNC office to see if space is available.

Thank you to our amazing sponsors! 

Gold

Star Therapeutics

Silver

HemaBiologics

The Charlotte Festival & Walk is on June 6, register and donate today!

The Charlotte Festival & Walk has passed, but there is still time to donate!

The BDFNC office will be closed from December 22 to January 4 for the holiday season. Please note: All assistance programs will be paused (you can still apply) and applications will be reviewed once the office re-opens.