2025 Ultra Rare Bleeding Disorders & VWD Community Weekend – Virtual

2025 Ultra Rare Bleeding Disorders & VWD Community Weekend – Virtual September 20-21, 2025

Virtual (Zoom)
Registration Deadline: 09/18/2025 11:59 PM

Community Connections     ◊    Education    ◊    Support

The Bleeding Disorders Foundation of North Carolina invites you to the Ultra-Rare Bleeding Disorders and Von Willebrand Disease Community Education Weekend. This event is dedicated to community members who are affected by any ultra-rare factor deficiency, platelet disorder, or von Willebrand disease (VWD) to provide you with connections and education that will empower you to overcome barriers and manage your bleeding disorder.

We understand that you face unique challenges and need the opportunity to share experiences and knowledge in a safe space that is dedicated to you. By coming together, we can build a sense of community and belonging.

 

Registration is closed. Please contact the BDFNC office to see if space is available.

Thank you to our amazing sponsors! 

Gold

Novo Nordisk Star Therapeutics

Program Partner

The Raleigh Festival & Walk is on Nov 7, register and donate today!

The Raleigh Festival & Walk has passed, but there is still time to donate!

The BDFNC office will be closed from December 22 to January 4 for the holiday season. Please note: All assistance programs will be paused (you can still apply) and applications will be reviewed once the office re-opens.