For Bleeding Disorders Awareness Month, the Bleeding Disorders Foundation of North Carolina (BDFNC) is hosting various fun and informative events throughout March. We’ll have a mix of virtual and in-person events, all of which can be found below. We hope to see you at one or more of these events and celebrate this special month together!
Register for these events here or use the link below.
In-Person Events
| WHEN? | WHERE? | WHAT? |
| March 18 – 6:30pm
RSVP by March 15 |
Nino’s Cucina Italiana 511 Red Banks Rd Greenville, NC 27858 |
Your Family, Your Way Forward Explore how bleeding disorders impact parents, and get new strategies for finding a balance and a path forward that helps the whole family thrive. Sponsored by Sanofi |
| March 20 – 6:30pm
RSVP by March 16
|
Luigi’s Italian Chophouse and Bar 528 N McPherson Church Rd, Fayetteville, NC 28303 |
Shared decision making is a partnership between people with a bleeding disorder and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team, discuss therapy considerations, and find quality sources of information. Sponsored by Pfizer |
| March 25 – 6:30pm
RSVP by March 22 |
Sixty Six Grill and Taphouse 3440 Frontis St Winston-Salem, NC 27103 |
Gene Therapy for Hemophilia: Presentation on the advances in gene therapy research for hemophilia. This session will dive into gene therapy for hemophilia, how it works, and the goals of gene therapy. Sponsored by CSL Behring |
Virtual Events
| WHEN? | WHERE? | WHAT? |
| March 3 – 7:00pm
RSVP by March 2 |
Zoom | Join us as we kick off Bleeding Disorders Awareness Month with a fun and engaging virtual event! This interactive session will feature exciting games, prize giveaways, and opportunities to connect with others in the community. Plus, you’ll get an exclusive look at the incredible sponsors who make our awareness efforts possible. Meet with our sponsors, learn about resources available to you, and celebrate the start of a powerful month of advocacy, education, and support. Let’s come together and set the tone for an impactful March! |
| March 11 – 7:00pm
RSVP by March 10 |
Zoom | Join Takeda for an interactive program to help you define your goals and create a picture of where you want to go next. Discover more about hemophilia A and become the artist of your own journey. This program includes information about ADVATE® and ADYNOVATE® treatment options presented by a Takeda Community Education Specialist (CES). Sponsored by Takeda — OR — Participate in an educational program that will offer you and your family members the opportunity to learn about HEMGENIX, the first gene therapy approved for hemophilia B. You’ll gain insightful information and deepen your understanding of HEMGENIX through a LIVE Q&A session. Sponsored by CSL Behring |
| March 17 – 7:00pm
RSVP by March 16
|
Zoom | Rebalancing Hemostasis: People living with hemophilia now have multiple therapeutic options. Understanding the science behind these novel therapies can help patients and caregivers better understand how to navigate the hemophilia treatment landscape. This presentation explores hemostasis and the science behind new treatments for hemophilia, including one called rebalancing therapies. Join us for an interactive discussion to learn about key considerations and clinical data around rebalancing to potentially achieve hemostasis. What makes it a potential treatment option in hemophilia, and who might be a candidate? Sponsored by Pfizer |
| March 24 – 7:00pm
RSVP by March 23 |
Zoom | 10 Years of Trust – Join the Celebration Join Sanofi to learn about a treatment option for Hemophilia B, Alprolix. Mark Cleary, a longtime BDFNC community member, will share his experience with this product. Sponsored by Sanofi |
| March 31 – 7:00pm
RSVP by March 30 |
Zoom | As Bleeding Disorders Awareness Month comes to a close, join us for a heartfelt and inspiring finale event! We’ll reflect on the impact we’ve made throughout the month, celebrate community achievements, and give away special prizes to those who participated in our awareness activities. This is also a chance to share stories, connect with fellow community members, and reinforce the strength of our collective voice. Don’t miss this opportunity to wrap up the month on a high note! |
Thank you to our amazing sponsors!
Diamond Supporters
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Gold Supporter
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