Blood Brotherhood & SOAR Weekend – Pine Knoll Shores, NC

Blood Brotherhood & SOAR Weekend – Pine Knoll Shores, NC September 22-24, 2023

Trinity Center

618 Salter Path Road
Pine Knoll Shores, NC 28512

Registration Deadline: 09/01/2023 11:59 PM

Join us for the Blood Brotherhood & SOAR Weekend

The Bleeding Disorders Foundation of North Carolina is inviting men diagnosed with a bleeding disorder and women diagnosed with a bleeding disorder, along with their partner/spouse, and moms of daughters with a bleeding disorder, for a weekend to connect and learn together and, of course, have FUN! This year we will be going to the Trinity Center in Pine Knoll Shores, on North Carolina’s Southern Outerbanks.

There will be breakout sessions for men, women, and partners/spouses. Details of the agenda are still being finalized, so check back here for updates over the next couple of weeks. Some confirmed sessions are “Pain and Mental Health” and “Iron Deficiency in Women and Girls with Bleeding Disorders.” We’re also working on fun activities to socialize and have a good time.

The Blood Brotherhood Program is for men 18+ diagnosed with any bleeding disorder. We encourage men of all ages to join us!

The SOAR Program is for women 18+ diagnosed with any bleeding disorder and moms of girls diagnosed with a bleeding disorder.

Your stay, including accommodations, Friday and Saturday dinner, Saturday and Sunday breakfast and lunch, as well as snacks, are covered by BDFNC. Gas cards will be provided to attendees at the conclusion of the weekend for attendees who participate in all sessions.

If you have any questions, please contact us at events@bleedingdisordersnc.org or call/text Gillian at 919-272-6000.


AGENDA
*all sessions and times are subject to change

Friday, September 22
Arrive in the evening; Dinner at 6:30pm (Optional)
Saturday, September 23
8:00 AM Breakfast
9:00 AM – 9:30 AM Registration & Vendor Visit
9:30 AM – 10:00 AM Welcome, Icebreakers
10:00 AM – 10:45 AM Financial Tips
11:00 AM – 12:00 PM Pain & Mental Health
12:00 PM – 12:30 PM Vendor Visit
12:30 PM – 1:30 PM Lunch
1:45 PM – 2:45 PM Blood Brotherhood Session: Gene Therapy
SOAR Session: Iron Deficiency
2:45 PM – 3:15 PM Vendor Visit
3:15 PM – 6:00 PM Free Time
6:00 PM – 7:00 PM Dinner
7:30 PM Evening Activity: Miniature Golf (Optional)
Sunday, September 24
8:00 AM Breakfast
9:00 AM – 10:00 AM Mindfulness
10:00 AM – 11:00 AM Blood Brotherhood Session: Physical Therapy
SOAR Session: Advocating as a Woman Roundtables
Partners/Spouses Support Sessions
11:00 AM – 11:30 AM Vendor Visit
11:30 AM – 12:00 PM Wrap Up
12:00 PM Lunch and Depart

 

 

Registration is closed. Please contact the BDFNC office to see if space is available.

Gold Sponsors

BioMarin         

Novo Nordisk.                 Sanofi

 

Silver Sponsor

The Raleigh Festival & Walk is on Nov 2, register and donate today!

The Raleigh Festival & Walk has passed, but there is still time to donate!