Join us for the Blood Brotherhood & SOAR Weekend
The Bleeding Disorders Foundation of North Carolina is inviting men diagnosed with a bleeding disorder and women diagnosed with a bleeding disorder, along with their partner/spouse, and moms of daughters with a bleeding disorder, for a weekend to connect and learn together and, of course, have FUN! This year we will be going to the Trinity Center in Pine Knoll Shores, on North Carolina’s Southern Outerbanks.
There will be breakout sessions for men, women, and partners/spouses. Details of the agenda are still being finalized, so check back here for updates over the next couple of weeks. Some confirmed sessions are “Pain and Mental Health” and “Iron Deficiency in Women and Girls with Bleeding Disorders.” We’re also working on fun activities to socialize and have a good time.
The Blood Brotherhood Program is for men 18+ diagnosed with any bleeding disorder. We encourage men of all ages to join us!
The SOAR Program is for women 18+ diagnosed with any bleeding disorder and moms of girls diagnosed with a bleeding disorder.
Your stay, including accommodations, Friday and Saturday dinner, Saturday and Sunday breakfast and lunch, as well as snacks, are covered by BDFNC. Gas cards will be provided to attendees at the conclusion of the weekend for attendees who participate in all sessions.
If you have any questions, please contact us at events@bleedingdisordersnc.org or call/text Gillian at 919-272-6000.
AGENDA
*all sessions and times are subject to change
Friday, September 22 |
Arrive in the evening; Dinner at 6:30pm (Optional) |
Saturday, September 23 | |
8:00 AM | Breakfast |
9:00 AM – 9:30 AM | Registration & Vendor Visit |
9:30 AM – 10:00 AM | Welcome, Icebreakers |
10:00 AM – 10:45 AM | Financial Tips |
11:00 AM – 12:00 PM | Pain & Mental Health |
12:00 PM – 12:30 PM | Vendor Visit |
12:30 PM – 1:30 PM | Lunch |
1:45 PM – 2:45 PM | Blood Brotherhood Session: Gene Therapy SOAR Session: Iron Deficiency |
2:45 PM – 3:15 PM | Vendor Visit |
3:15 PM – 6:00 PM | Free Time |
6:00 PM – 7:00 PM | Dinner |
7:30 PM | Evening Activity: Miniature Golf (Optional) |
Sunday, September 24 | |
8:00 AM | Breakfast |
9:00 AM – 10:00 AM | Mindfulness |
10:00 AM – 11:00 AM | Blood Brotherhood Session: Physical Therapy SOAR Session: Advocating as a Woman Roundtables Partners/Spouses Support Sessions |
11:00 AM – 11:30 AM | Vendor Visit |
11:30 AM – 12:00 PM | Wrap Up |
12:00 PM | Lunch and Depart |